Mission: To improve the lives of children, adults and families impacted by neurofibromatosis, with a focus on clinics, awareness, research, education and support.

Reach: Illinois, Indiana, Iowa, Kentucky, Wisconsin and eastern Missouri

Programs:

• Funding grants of $10,000 to $50,000 to research treatments and cures

• Creating and supporting neurofibromatosis clinics to improve care and treatment

• Supporting education through an annual symposium and regional “Lunch with the Doctor” events

• Supporting families with information, referrals to specialists and connections to other NF families

• Helping send children with NF to Camp New Friends where they can have a camp experience and improve self-esteem without feeling different

Impact: NF Midwest has funded more than $1.1 million in research grants since 1983; the organization also provides grants to create and support neurofibromatosis clinics including the University of Chicago NF Clinic and the Ann and Robert H. Lurie Children’s Hospital of Chicago NF Clinic

Fundraisers: Great Steps 4NF Walks (Naperville is one of seven locations in the NF Midwest service area hosting walks from May to September) and Do It 4 NF outings

Info: (630) 945-3562 or nfmidwest.org